Adding to the tenant protections previously passed, during their meeting on Tuesday, August 27, 2024, on a 5-0 vote, the Antioch City Council approved a Just Cause Eviction ordinance limiting the ability of landlords to evict tenants except for specific reasons and, if they do, the landlord must give notice to both the tenant and the City and pay for the tenant’s relocation costs. The ordinance was negotiated between representatives of tenants, community organizations, the apartment owners’ association, city council and staff members.
According to the city staff report on the item, State law requires “just cause” for a landlord to evict a tenant who has continuously and lawfully occupied a residence for at least 12 months. The California Tenant Protection Act of 2019 (“TPA”) limits rent increases and places restrictions on landlords’ ability to evict tenants, unless the eviction is as a result of a “just cause” that is defined by state law. The TPA also imposes certain notice and language requirements, “Just cause” includes “at-fault” evictions for wrongful or malicious conduct by tenants and “no-fault” evictions, such as when a property owner or their immediate family move into an otherwise occupied unit, remove a unit from the rental market, or when a landlord intends to demolish or “substantially remodel” a unit.
The city’s ordinance extends the time to 24 months after eviction for the former tenant to have first-right-of-refusal be offered from the landlord to rent the unit, again, without an increase in rent more than the allowable increases under state law and city ordinances.
In addition, under the City’s ordinance, if the tenant hasn’t done anything wrong, but the landlord is asking them to move out, then they must both notify the city and pay for the tenant’s relocation costs, in an “amount equal to two times the Tenant’s monthly rent in effect when the Landlord served the notice to terminate the tenancy.”
The city staff report claims the ordinance will require an additional city staff member and “increased future workloads for the City Attorney’s Office related to new inquiries and requests for services from tenants and landlords.”
For the public hearing there was only a proponent to speak in favor of the ordinance, but no opponent to speak against it. The proponent, an attorney, said, “Under Antioch’s new ordinance, everyone has just cause for eviction protections,” speaking specifically of renters.
Several members of the public spoke in favor of the ordinance, including representatives of ACCE Action and Rising Juntos Antioch and two council candidates in District 3, Addison Peterson and Antwon Webster.
During council member discussion of the ordinance, District 1 Councilwoman Torres-Walker said, “Now everyone in Antioch is covered.”
“Thank you all for pushing us,” Mayor Pro Tem Monica Wilson said. “We finally made it, but we have to keep on keeping them honest.”
Mayor Lamar Hernandez-Thorpe thanked, “the attorneys and everyone who participated in the meetings. This is a big deal for the community.” He mentioned it took almost four years to get the ordinance developed and adopted.
Following council discussion, the ordinance passed on a unanimous vote.
The audience erupted with cheers and shouts of, “Si, se puede” which means, “yes, we can.”
Attorney says agencies “utterly failed in their duties” to protect 18-month-old girl abused by parents also named in suit
Antioch childcare facility, Pittsburg pediatrician also named
CONTENT WARNING: Information included may be disturbing to some individuals
San Francisco, August 20, 2024 — A federal civil rights lawsuit was filed in the beating death of an 18-month-old child in Antioch, alleging that a litany of individuals and agencies charged with protecting the tiny girl utterly failed in their duties and led directly to her death as the result of trauma inflicted by her biological parents.
The case, filed last week in Federal District Court on behalf of the two older siblings of the toddler, names the following defendants as negligently responsible for her horrific death: the City of Antioch, Antioch Police Department, Contra Costa Child Protective Services, Contra Costa County Regional Health Foundation, and a childcare facility, The Learning Center (actually named, The Learning Experience – see below), as well as the toddler’s biological parents, Jessika Fulcher and Worren Young, Sr.
The child was removed from her parent’s custody within weeks of her birth in February 2021 because she was in danger of neglect and abuse. Yet, over the next 16 months, the very people and institutions who were supposed to protect the toddler and her siblings failed to report obvious signs of abuse and/or failed to take action to prevent further trauma to the girl.
The child died August 26, 2022, from trauma so severe that it severed her pancreas and caused bleeding in her brain, according to doctors and the lawsuit.
The lawsuit seeks unspecified monetary damages, including punitive damages against the agencies and individuals named as responsible in the legal action.
“This child–who was still learning to walk–was brutally tortured and died a horrific death, all because the entire system that was supposed to protect her failed this innocent 18-month-old child,” said Brett Schreiber, attorney for the plaintiffs and partner at Singleton Schreiber law firm. “While her parents committed the physical abuse that killed her, their abuse was entirely enabled and abetted by social workers, police, hospitals and day care centers who should have stopped them.”
A juvenile court judge removed the toddler from the custody of her parents in March 2021, shortly after her birth. When the child was born, both she and her mother had methamphetamines in their systems. In addition, both parents had outstanding warrants in Georgia. The children were placed in foster care.
Within weeks of the judge’s decision, however, Contra Costa County Child Protective Services (CPS) began a process intended to lead to reuniting the children with the parents, beginning with a “case plan” requiring close supervision of the parents. The case plan required the parents to submit to regular drug testing. The suit alleges that they missed half these mandated tests and failed many that they took.
A doctor at Pittsburg Health Center further noted injuries on the toddler, but neither the doctor nor the hospital notified CPS, and CPS never requested the hospital’s records.
Nonetheless, CPS soon allowed overnight visitations for the children with the parents, and by September 2021 enabled the parents to regain custody by concealing these and other facts from the judge.
The toddler returned to a household in turmoil, with Antioch police visiting the home at least three times in 2022. Yet the children remained in the home and no referral to CPS was made, even though the father was finally arrested for domestic violence and battery. The child’s daycare center, The Learning Center in Antioch, also alerted the mother regarding significant bruising on the toddler yet failed to make a mandated referral to CPS.
On August 25, 2022, Antioch Police Department officers and paramedics were called to the child’s home by her mother who reported that the girl was having trouble breathing. The girl was rushed to the hospital where doctors discovered she was the victim of severe, intentional injuries.
Her parents left the hospital during the night saying they were going out to smoke, but never returned. The girl died the following morning; a juvenile court hearing in April 2023 concluded that one or both parents were responsible for the fatal injuries.
“This was a complete dereliction of duty that resulted in the death of one young child and the lifelong loss and trauma for two others,” Schreiber said. “On behalf of those siblings, we are asking the court not only to compensate them for the life-long emotional scarring they will suffer, but also to punish those who failed to prevent this horrible tragedy so that it never happens again.”
Antioch City Attorney Thomas L. Smith and Interim Antioch Police Chief Brian Addington were asked on Tuesday afternoon if they had any comment about the lawsuit. Addington was also asked if lawsuits naming the police department are received by the chief or if they are handled by the city attorney’s office. Neither responded by publication time Wednesday evening.
Asked if the County had any comment on the lawsuit, Tish Gallegos, Community Relations and Media for the Contra Costa County Employment & Human Services Department responded, “The County has not been served with the lawsuit, therefore has no comment at this time.”
Asked whom at the County was served with the lawsuit, Sam Singer, of Singer Associates Public Relations representing Singleton Schreiber said, “I know the lawsuit was filed but it may not have been served, yet.”
Provided with that information and asked how Sullivan, Lewis and Ponnaluri are related to the lawsuit, Singer shared details from the lawsuit, including: “over the next year, from March 2021 to April 2022, during the pendency of the dependency action, CPS workers—Defendants in this action— abysmally failed to protect O.Y. and W.Y. Defendants Colleen Sullivan and Does 1-10, CPS employees, repeatedly misled and deceived the juvenile court. They represented that Defendant Parents were complying with the court’s orders documented in a ‘case plan,’ when, in fact, Defendant Parents were violating the terms of the case plan.”
Singer also shared, “defendant Flynne Lewis was a pediatrician practicing medicine at the Pittsburg Health Center who was responsible for the health, safety, and welfare of Decedent O.Y. and Plaintiff W.Y. Defendant Lewis and staff working at the Pittsburg Health Center noted and documented signs of abuse and neglect of O.Y., but failed to report such information to CPS or any law enforcement agency.”
Finally, Singer provided details about the correct name for the business and its owner which reads, “At all relevant times, Defendant The Learning Experience was a daycare center located at 4831 Lone Tree Way, Antioch, CA 94531 which was owned and operated by Defendant Raji Ponnaluri.”
Singleton Schreiberis a client-centered law firm, specializing in mass torts/multi-district litigation, fire litigation, personal injury/wrongful death, civil rights, environmental law, and sexual abuse/trafficking. Over the last decade, the firm has recovered more than $2.5 billion for clients who have been harmed and sought justice. The firm also has the largest fire litigation practice in the country, having represented over 26,000 victims of wildfire, most notably serving plaintiffs in litigation related to the 2023 Maui wildfires, the Colorado Marshall wildfire, the Washington Gray wildfire, and others.
George Washington Elementary School Principal Gina Lopez, in Lodi, welcomes students on the first day of school on July 30. Photo credit: Diana Lambert / EdSource
Include requiring menstrual products in elementary boy’s bathrooms – supported by all of Contra Costa’s state legislators; allowing kids 12 or older to consent to mental health care without parental consent, keeping transgender student secrets from parents, climate change instruction,more
California students, including those in elementary school, will have better access to mental health care, free menstrual products and information about climate change this school year. The expansion of transitional kindergarten also means there will be more 4-year-old students on elementary school campuses.
These and other new pieces of education legislation will go into effect this school year, including a bill that bans schools from suspending students for willful defiance and another that offers college students more transparency around the cost of their courses and the materials they will need to purchase for them.
Here are a few new laws that may impact students in the 2024-25 school year.
Climate change instruction required
Science instruction in all grades — first through 12th — must include an emphasis on the causes and effects of climate change, and methods to mitigate it and adapt to it. Although many schools are already teaching students about climate change, all schools must incorporate the topic into instruction beginning this school year.
Content related to climate change appears in some of the state curriculum frameworks, according to an analysis of Assembly Bill 285, the legislation that created the requirement.
Assemblymember Luz Rivas, D-Arieta, the author of the bill, said the legislation will give the next generation the tools needed to prepare for the future and will cultivate a new generation of climate policy leaders in California.
“Climate change is no longer a future problem waiting for us to act upon — it is already here,” Rivas said in a statement. “Extreme climate events are wreaking havoc across the globe and escalating in severity each year.”
Menstrual products in elementary bathrooms
A new law in effect this year adds elementary schools to the public schools that must offer a free and adequate supply of menstruation products — in order to help younger menstruating students.
Last school year, the Menstruation Equity for All Act went into effect, requiring public schools serving sixth- through 12th-grade students to provide menstruation products. It affected over 2,000 schools.
The new law expands the requirement to public schools that serve third- through fifth-grade students. A Senate analysis of the legislation notes that 10% of menstruation periods begin by age 10, according to a Centers for Disease Control and Prevention report.
The new law requires affected schools to offer free menstrual products in all-gender bathrooms, women’s bathrooms and at least one men’s bathroom on each campus. The legislation, authored by Assemblymember Eloise Gómez Reyes,D-San Bernardino, includes one men’s bathroom on each campus to offer access to transgender boys who menstruate.
Supporters of the bill note that menstruation isn’t always predictable and can strike at inopportune times, such as during a test. Menstruation products can also be pricey — especially for students who might also be struggling with food insecurity.
Girl Scout Troop 76 in the Inland Empire advocated for the bill. Scout Ava Firnkoess said that menstruation access is important to young girls, like her, who started menstruating early.
“I have another friend who also started at a young age. She had to use toilet paper and paper towels because she did not have access to menstrual products,” Firnkoess said in a statement. “We think young students who start their periods need to have access to products, not just those who start in sixth grade or later.”
According to the California Legislative Information website, State Senators Steve Glazer (D-SD7, Orinda) and Nancy Skinner (D-SD9, Berkeley), and Assemblymembers Tim Grayson (D-AD15, Concord), Lori Wilson (D-AD11, Suisun City), Rebecca Bauer-Kahan (D-AD16, Orinda) and Buffy Wicks (D-AD14, Oakland) all voted for the bill.
Younger students on campus
Elementary students may seem to be getting a little smaller this year, as transitional kindergarten classes are expanded to children who will turn age 5 between Sept. 2 and June 2.
Transitional kindergarten, an additional grade before kindergarten, was created for 4-year-old children who turn 5 before Dec. 2. It has been expanded each year since 2022 to include more children aged 4. All 4-year-old students will be eligible in the fall of 2025.
Gov. Gavin Newsom and State Superintendent of Public Instruction Tony Thurmond have celebrated the expansion of transitional kindergarten, pointing to numbers that show enrollment doubled over the past two years, from 75,000 in 2021-22, to 151,000 in 2023-24. However, a recent analysis by CalMatters found that the percentage of children eligible for transitional kindergarten who actually enrolled had gone down 4 to 7 percentage points.
Colleges must disclose costs
The typical California college student is expected to spend $1,062 on books and supplies in the 2024-25 academic year, according to the California Student Aid Commission.
The exact costs can be hard for students to predict, leaving them uncertain about how much money to budget for a given class. Assembly Bill 607, which Newsom signed last year, requires California State University campuses and community colleges to disclose upfront the estimated costs of course materials and fees for some of their courses this school year. The bill asks University of California campuses to do the same, but does not make it a requirement.
The schools must provide information for at least 40% of courses by Jan. 1 of next year, increasing that percentage each year until there are cost disclosures for 75% of courses by 2028. This year, campuses should also highlight courses that use free digital course materials and low-cost print materials, according to the legislation.
Proponents of the law, which was co-authored by Assemblymembers Ash Kalra, D-San Jose; Isaac Bryan, D-Los Angeles; and Sabrina Cervantes, D-Inland Empire, said it will promote price transparency. The bill covers digital and physical textbooks as well as software subscriptions and devices like calculators.
A student speaking in support of AB 607 in May 2023 said she felt “helplessly exposed and vulnerable” when she had to appeal to a professor for help covering the surprise costs of a textbook’s online course content.
“If I would have known that a month ahead of time, I could have organized and evaluated my budget in an effective manner for the entire semester,” said Rashal Azar. “This would have prevented my financial anxiety and not triggered my mental health as well.”
TK exempt from English language test
Students enrolled in transitional kindergarten, also known as TK, are no longer required to take the initial English Language Proficiency Assessment for California (ELPAC). The test, which measures proficiency in listening, speaking, reading and writing in English, is required to be taken within 30 days of enrollment in kindergarten through 12th grade, if parents indicate in a survey that their children speak another language at home.
Previously, transitional kindergartners also had to take the ELPAC when enrolling. But many school district staff and advocates for English learners said the test was not designed for 4-year-old children and that it was not identifying English learners accurately, because the children were too young to answer questions correctly.
The California Department of Education has directed school districts to mark children’s English language acquisition status as “to be determined” in the California Longitudinal Pupil Achievement Data System, if their parents indicate on the home language survey that their primary or native language is a language other than English. These students will take the initial ELPAC when they begin kindergarten the following year.
Californians Together, which advocates for English learners, and Early Edge California, which advocates for quality early education for all children, were among the organizations that celebrated the bill.
“As the parent of bilingual children and a dual language learner myself, I deeply appreciate Governor Newsom, Assemblymember (Al) Muratsuchi, and California’s legislators for supporting our young multilingual learners by championing AB 2268,” said Patricia Lozano, executive director of Early Edge California in a news release. “This bill will create more support tailored to their needs and strengths, so they can learn and thrive from the early years onward.”
Kids can consent to mental health care
A new law that took effect in July makes it easier for children on Medi-Cal who are 12 or older to consent to mental health treatment inside and outside of schools. Children older than 12 on private insurance can already consent to mental health care without parental consent.
Previously, students in this age group could only consent to mental health treatment without parental approval under a limited number of circumstances: incest, child abuse or serious danger, such as suicidal ideation.
“From mass shootings in public spaces and, in particular, school shootings, as well as fentanyl overdoses and social media bullying, young people are experiencing a new reality,” said Assemblymember Wendy Carrillo, D-Los Angeles, author of the bill. “The new law is about “making sure all young people, regardless if they have private health insurance or are Medi-Cal recipients, have access to mental health resources.”
Children who need mental health care but do not have consent from their parents could potentially seek help from social media and other online resources of sometimes dubious quality, according to the legislation.
The legislation allows mental health professionals to determine whether parental involvement is “inappropriate” and also whether the child in question is mature enough to consent.
California Capitol Connection, a Baptist advocacy group, opposed the bill, stating, “In most cases, a parent knows what is best for their child.”
This is not strictly an education bill, but it does affect schools. The law notes that school-based providers, such as a credentialed school psychologist, find that some students who want to avail themselves of mental health resources are not able to get parental consent.
No willful defiance suspensions
Beginning this school year, and for the next five years, California students across all grade levels cannot be suspended for willful defiance.
Acts of willful defiance, according to Senate Bill 274, include instances where a student is intentionally disruptive or defies school authorities. Instead of being suspended, these students will be referred to school administrators for intervention and support.
SB 274 builds on previous California legislation that had already banned willful defiance suspensions among first-through-eighth-grade students, and had banned expulsions for willful defiance across the board.
Los Angeles Unified, Oakland Unified, San Francisco Unified and other school districts have already banned the practice.
SB 274 would apply to all grades TK through 12 in both traditional public schools and charters. The bill would also prohibit schools from suspending or expelling students for being tardy or truant.
Schools can’t ‘out’ students
After Jan. 1, California schools boards will not be permitted to pass resolutions requiring teachers and staff to notify parents if they believe a child is transgender.
Newsom signed the Support Academic Futures and Educators for Today’s Youth, or SAFETY Act, in July in response to the more than a dozen California school boards that proposed or passed parental notification policies in just over a year. At least seven California school districts passed the policies, often after heated public debate.
The policies require school staff to inform parents if a child asks to use a name or pronoun different from the one assigned at birth, or if they engage in activities and use facilities designed for the opposite sex.
The new law protects school staff from retaliation if they refuse to notify parents of a child’s gender preference. The legislation also provides additional resources and support for LGBTQ+ students at junior high and high schools.
“Politically motivated attacks on the rights, safety and dignity of transgender, nonbinary and other LGBTQ+ youth are on the rise nationwide, including in California,” said Assemblymember Chris Ward, D-San Diego, who introduced the legislation along with the California Legislative LGBTQ Caucus.
The Grace Childcare Center is now open on the campus of Grace Bible Fellowship of Antioch. Photo: Grace Arms
“This place has been dedicated, everything in and around this house. Everything we submit to the Lordship of Jesus Christ.” – Pastor Kirkland Smith
By Allen D. Payton
On Sunday, July 7, 2024, Grace Bible Fellowship Church of Antioch celebrated the Grand Opening of its new Grace Childcare Center, a project of the church’s Grace Arms non-profit organization.
The Grace Childcare Center is a state-of-the-art preschool situated in Antioch. Our center is committed to delivering exceptional childcare services, fostering interactive learning, and creating unforgettable childhood experiences. We are currently seeking highly motivated teachers who can inspire and contribute to our outstanding team. This presents an excellent opportunity to join a friendly, vibrant, and dynamic work environment.
During the ribbon cutting ceremony, Pastor Kirkland Smith read Psalm 127:1 saying, “Unless the Lord builds the house, they labor in vain. Unless the Lord watches over the city, the guards that stand watch are in vain. For every house is built by somebody but God is the builder.”
“May every person who enters this property know they’re entering on holy ground,” he continued. “This place has been dedicated, everything in and around this house. Everything we submit to the Lordship of Jesus Christ.”
Pastor Kirkland Smith and Program Director Beate Bell cut the ribbon to officially open the Grace Childcare Center on Sunday, July 7, 2024. Source: Grace Arms video screenshots.
“So, it’s a privilege, it’s an honor as we embark upon another new chapter and endeavor for us,” Smith stated. He and Program Director Beate Bell then cut the red ribbon on the outside of the entrance doors.
“We’re ready to open. We’re ready for business,” the pastor added.
Grace Childcare Center’s mission is to provide a safe learning environment for children ages 24 months through five years old.
The focus is to equip each child with a stimulating early childcare experience focused on promoting strong cognitive and emotional development in order to build up community, civic and socially-minded individuals. This will be done through creative and hands on learning, with parental involvement, to build a firm and enduring foundation in the early formative years.
Operating hours are from 7am – 6pm, Monday through Friday. The facility holds 20 children in three fun and creative animal themed rooms, Duckie, Panda and Tiger where the children will engage in a play-based curriculum including yoga, arts and music.
4 Ever Me Foundation set to impact youth in Contra Costa County
Antioch, CA – As we gear up for the new school year, 4 Ever Me Foundation is excited to announce the 12th Annual Stuff the Bus School Supply Giveaway, a beloved event dedicated to supporting families in need of school essentials. We cordially invite the community to join us for a day of fun, entertainment, food, and invaluable resources.
For over a decade, our mission has been to ensure that every child embarks on their academic journey fully prepared and equipped with the necessary tools for success. Thanks to the generous contributions from our community and local sponsors, we have been able to provide crucial resources for students year after year. This event, which started in 2012, has grown immensely and garnered support from influential organizations such as the Golden State Warriors, who have been steadfast partners for nearly 9 years.
The Stuff the Bus School Supply Giveaway initially began as an AUSD-targeted initiative, identifying the need among students attending Black Diamond Middle School. Originally held at Pegnim and Ivancich law firm now, Ivancich and Costis in Antioch, the event occurred twice a year – once at the beginning of the school year and another midway – ensuring that students had ample supplies to last the entire academic year. As word spread and families from various school districts began attending, the event transitioned to a one-day gathering serving students from across Contra Costa County. We embrace our commitment to meeting the community’s needs, and this event will continue as long as the need exists.
The 4 Ever Me Foundation is committed to supporting the socio-emotional well-being of youth by providing resources for success, encouraging youth involvement within the community, and nurturing youth leaders. Founder, Claryssa Wilson, recounts how the event became the catalyst for establishing 4 Ever Me Foundation, recognizing the opportunity to make a broader impact on the community. The foundation’s name originated from a longstanding Instagram handle created in 2012, symbolizing the importance of staying true to oneself despite challenges faced during middle school. With the foundation in the process of being established in 2021, after prioritizing personal education, including graduating from Antioch High School in 2019 and in 2023 earning a bachelor’s degree from San Diego State University, Wilson leads a dedicated executive team, including former peers and family members.
At the event, attendees can expect the following:
FREE School Supplies: We have stocked up on a wide range of school essentials, including backpacks, binders, notebooks, pens, pencils, and more. These supplies will be available for students to pick out, ensuring they get items they will truly love and use. We provide supplies for Pre-K through College!
Entertainment: Families can enjoy a variety of entertainment options, including games, face painting, and live performances. We guarantee a day full of joy and smiles!
Food: A delicious assortment of food vendors will be available for everyone to enjoy throughout the event.
Resources: Beyond school supplies, we understand the importance of addressing other essential needs. Our event will feature resource booths offering FREE information on health services, community programs, and other support services.
To ensure a smooth check-in process for all attendees, we kindly request that families register in advance by filling out the online form. Additionally, for those interested in donating or volunteering, the QR code on the attached flyer provides convenient access to relevant information and opportunities.
We are determined to make this year’s Stuff the Bus School Supply Giveaway the most impactful one yet! For media inquiries, interviews, or further information about the event, please reach out to Claryssa Wilson at 4evermefoundation@gmail.com or Velma Wilson at (925) 250-3051
Together, let’s create a positive impact on the lives of our children and build a brighter future for our community. We look forward to welcoming you on August 3rd at Dallas Ranch Middle School!.
By Annette Bakker, President, Children’s Tumor Foundation
Imagine receiving the shattering news that your daughter has cancer. Suddenly, you’re battling for her life. In the midst of treatment, you’re asked to sign a flurry of consent forms for her tissue to be donated for scientific research.
Seeking to help others devastated by the same cruel disease, you agree. But in a twist, you’re never told how her tissue samples are actually being used — or if they ever get used at all.
You wouldn’t be alone. I lead the Children’s Tumor Foundation, a nonprofit dedicated to fighting a rare genetic disease called neurofibromatosis, or NF. There’s no cure for the condition, which causes tumors to grow on nerves. The families I work with are desperate for treatments. That’s why they sign the many lengthy “informed consent” documents presented to them at hospitals, asking for permission to use tissue taken for research. But they have no control over how those samples are eventually utilized. Often, specimens simply collect dust on shelves.
The same thing happens frequently to older cancer patients and those battling other diseases. Many have undergone a biopsy or provided another tissue sample for the purpose of testing or treatment. They often wrongly assume that their samples will be used to aid research, and so sign out of a wish to help others.
Unlike organ donation, the market for “biomaterial” is largely unregulated. Hospitals typically provide it to “biobanks,” storage facilities that enter into partnerships with hospitals to gain access to tissue.
Currently, biobanks often impede medical progress by hoarding specimens. I know firsthand that a lack of access to tumor samples and cell lines is a major problem for NF research. I regularly encounter obstacles in helping researchers obtain these materials.
Even when biobanks do provide specimens to researchers, they typically choose those with whom they have strong personal relationships or who can help them publish in prestigious publications. That means researchers in many fields lack access to tissue that would validate their hypotheses.
Most cancer patients want to support research, even if they don’t stand to benefit directly. But it’s deeply unfair to take someone’s tissue or bone marrow without telling them how such tissue will be used — or giving them a say in who gets to use it.
Beyond basic ownership, patients should have more input on how their biomaterial is used. They should be able to decide for themselves which researchers receive their specimens — or consult with trusted patient organizations to make such decisions. They should also have the option to donate only to nonprofit biobanks, or to stipulate that access to their material shall not be restricted at all.
While some biobanks tout a supposed commitment to valuing patient input, these proclamations are little more than window dressing in practice. To give patients a real say in the tissue donation process, we need patient committees for biobanks at large hospitals. Numerous studies have found that public involvement in biobanks bolsters long-term medical research and ensures more samples end up in laboratories.
Patients deserve transparency and influence when it comes to how their own bodies are used for research. Empowering them to make informed decisions will help accelerate medical progress for the greater good.
For information about the Children’s Tumor Foundation visit www.ctf.org.
